Proceeds & Donations

Camp Sundown Partners  

The Xeroderma Pigmentosum Society is proud to announce a number of ongoing partnerships that benefit Camp Sundown. 

 

For more information, please click on the links below. 

Donations can be mailed to:

 

XP Society Inc.

437 Snydertown Road

Craryville, NY 12521

 

Or made through PayPal

by clicking here:

 

All Donations are tax-deductible

and sincerely appreciated.

The generosity of our volunteers, donors and contributors makes Camp Sundown possible year after year. We are able to help so many people affected by XP and related photosensitivity diseases because of their time and financial support. Donations to Camp Sundown can be made directly, through PayPal or through several partners and annual fundraisers. 

Other Ways To Help

Spread the word

  • Like and share our Facebook page with friends

  • Tweet, text, call and/or write letters to Congress asking them to support an increase in funding for research

  • Write or call local newspapers, local radio and TV stations tell them about XP and how important research is. Educate reporters about the ill effects of increasing UV radiation due to depletion of the ozone layer, which affects all of us. Let them know that  XP research will benefit everyone.

 

Fundraisers

Contact XPS to find out how you can help by organizing a fund raiser event or project in your community by clicking here.

 

Volunteer to help the XP Society

Print this form from your browser, then mail to the address on the form.

Several people have volunteered to spend their vacation helping at Camp Sundown.

 

Work Place Contributions

Employers: We would love to talk with you about how your company and employees can help through work place contributions directed to The XP Society. Employees: We participate in the SEFA (State Employee Federated Appeal for NYS employees) #61-00162, CFC (Combined Federal Campaign for government employees), and United Way (by county). Many employers also offer a generous matching or even double matching gift program to help support giving by employees. Ask if your company will match your donation. For tax purposes, our federal ID # is 14-1779906. We sincerely appreciate all work place contributions. Thank you!

 

Estate Planning

Contact XPS for further information, by clicking here.

 

Pray

Daily life is a challenge. Some people with XP will be more susceptible to significant health complications. Pray for the patients as well as their families for patience, strength, comfort, compassionate care and most of all a cure.

Driving Force Club

Established in 2009, the Driving Force Club is a close-knit community of exotic and high-end sports car drivers. DFC organizes and participates in around 35-50 events per year including: Sunday morning breakfast gatherings, group drives track days, runway rentals, photo shoots, karting sessions and social events DFC members also enjoy participating in charity car shows and fundraisers. We are grateful to the DFC for raising vital funds in past years to support Camp Sundown and our projects and  events.

Smart Shopping

Amazon.com

Give by shopping with Amazon.com. Place merchandise orders here and a portion of all online purchases will benefit the XP Society. 

 

 

******************************************************************************

XP 1500 Club

This campaign is for long term success and operation of the XP Society and Camp Sundown. Gifts of $1000 designated to this account go into ten year treasury notes to not only gain operating monies through quarterly interest but ensures a solid foundation for Camp Sundown into the future. Gifts to the XP 1500 Club can be checks mailed to XP Society, 437 Snydertown Rd, Craryville, NY 12521 or through PayPal on this page. Please specify in the "memo" section " 1500 Club. Thank you!

Brand & Buzz is a strategic communications consulting firm that helps clients get the most out of their communications programs. Specifically, we offer guidance on earned and paid media campaigns, social media and web design. Brand & Buzz was proud to redesign the Camp Sundown website and help on social engagement. Click here for more information about our firm.

Brand & Buzz founder, Suzy Wagner is also author of The Secret Life of Teddy Harrington. The story explores one little boy's day of imagined adventures, answering every parent's question, "I wonder what he's thinking?" Suzy will be donating signed copies of her books to Camp Sundown campers. To either sponsor copies of this and other books that Suzy has written or to purchase copies, click here.

Moon Viewing

Representing ten years of travel and research, Moon Viewing: Megaliths by Moonlight surveys megalithic stones from Sweden to West Africa and east to Armenia. Night photography emphasizes the relationship to stars and planets.
10% of all proceeds from the sale of this book will benefit Camp Sundown.

 

Megaliths by Moonlight with Photographs by Barbara Yoshida, Essay by Lucy R. Lippard and Foreword by Linda Connor  Published by Marquand Books Distributed by D.A.P. September 2014 Hardcover, 8.75 x 11.25 in. 80 pages / 39 color photographs. Edition of 500

ADDRESS

437 Snydertown Road

Craryville, NY 12521, USA

 

Telephone: (518) 929-2174

 

Email: xps@xps.org

  • Facebook App Icon
  • YouTube Classic

Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

Subscribe for Updates

© 2015 by Xeroderma Pigmentosum Society