Welcome

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Learn about xeroderma pigmentosum (XP) , a rare genetic disease, and about the Xeroderma Pigmentosum Society (XPS), dedicated to helping XP families, patients and those afflicted with similar life-threatening sun-sensitivity disorders.

 

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CAMP SUNDOWN 2015 

July 6-12 (Returning Campers Only)

July 15-19 (New and returning campers)

Please email caren@xps.org for registration and information

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UPCOMING EVENTS:

June: DFC Powers Camp Sundown June 2015

                                          July: CAMP SUNDOWN 2015: July 6-12 and July 15-19

           Contact xps@xps.org for registration and information.

August: Camp Sundown Golf Classic Copake , NY

FALL: Comedy Night/Auction at Campbell Hall, NY

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PROCEEDS Benefit Camp Sundown!

MOON VIEWING
Megaliths by Moonlight with Photographs by Barbara Yoshida, Essay by Lucy R. Lippard and Foreword by Linda Connor  Published by Marquand Books Distributed by D.A.P.
September 2014 Hardcover, 8.75 x 11.25 in. 80 pages / 39 color photographs
Edition of 500

Representing ten years of travel and research, Moon Viewing: Megaliths by Moonlight surveys megalithic stones from Sweden to West Africa and east to Armenia. Night photography emphasizes the relationship to stars and planets. 10% of all proceeds from the sale of this book will benefit Camp Sundown.

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See Camper Kevin debut in the Youtube video by Duy Linh Tu called:

Daylight Fading: Children Allergic to the Sun released 3/20/2015

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Rotary Clubs in District 7210

help Camp Sundown:

Pawling Rotary Chocolate Festival11/15/2014   was a huge success raising over $5000 for Camp Sundown!

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Patterson Rotary which donates to Camp Sundown twice annually and puts on our Camp Feast each year

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March 14 Southern Ulster Rotarians Bowl for Camp Sundown and raise enough to sponsor

three campers!

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Camp Sundown Hosts October Harvest Moon Camp DSC069352014

 

The long Columbus Day weekend provided the perfect time for a final session of Camp Sundown for the year. Campers enjoyed the harvest season with pumpkin carving, costume creating and Halloween party, crafts and a lot of fun. We had a nice visit with Wendy Guntert and her beautiful dogs and a  last night campfire featuring Billy Flash, his sons and our good friend Zach Nayer  who helped wrap up the camp year in fun style. Special thanks to our volunteers Laura, Susan, Matt, Shannon and Chris!

 

Camp Sundown 2014… MardiGras Style!

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CAMP SUNDOWN 2014 POWERED BY THE DFC

The largest private racetrack in the country, Wilzig Racing Manor in Taghkanic, NY, was the site of the DFC club event this year that sponsors all of 2014 Camp Sundown programs. Over $40,000 was raised through the generosity of the drivers to not only run Camp Sundown but also take care of some much needed repairs. Beautiful weather further enhanced all the good intentions at the Wilzig estate, allowing drivers to test the track and enjoy a gourmet-prepared luncheon. The Wilzig family and the DFC are philanthropic to many wonderful causes and we are grateful to be their charity of choice for this event. Thank you! Please be sure to visit the many photos from GSquardeMedia and Facebook!

The XP Society is a 501(c)(3) not-for-profit charitable organization founded in 1995 by Caren and Dan Mahar, whose youngest daughter, Katie, has xeroderma pigmentosum. The organization is a means to provide the XP family support and information needed to cope daily with XP. The XP Society has always been international in its scope and support, since its beginning.

The XP Society offers information, support, advocacy, and protection to the XP family, patient and caregiver while promoting research for a cure.

Disclaimer: These pages are developed by XP families for information and support and should never replace a medical visit or recommendation.

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