Parents & Caregivers


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Xeroderma Pigmentosum (XP) is a scary diagnosis. It is considered a "rare disease" because it affects so few people each year. This means that it doesn't get as much attention or funding as other diseases. It also means that there's not as much information available about XP.

The most important thing to know is that you are not alone. XP does affect hundreds of people each year. The Xeroderma Pigmentosum Society is here to help you. You have an extended family of people who know what you are going through and are here to help. On this blog you'll find postings, articles and information about XP, symptoms and tips to make living with XP a little easier.

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