Xeroderma Pigmentosum Society

Camp Sundown

A night camp for children with life-threatening sun       sensitivity 

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    Parents & Caregivers

    Parents & Caregivers

    Xeroderma Pigmentosum (XP) is a scary diagnosis. It is considered a "rare disease" because it affects so few people each year. This means...
    Featured Posts
    Helpful Tips for the XP Patient

    Helpful Tips for the XP Patient

    Parents & Caregivers

    Parents & Caregivers

    Symptoms

    Symptoms

    Recent Posts
    What is Skin Cancer?

    What is Skin Cancer?

    NASA "Space Suits"

    NASA "Space Suits"

    Vitamin D

    Vitamin D

    To Beta Carotene or Not To Beta Carotene

    To Beta Carotene or Not To Beta Carotene

    DNA Repair Explained in Simple Terms

    DNA Repair Explained in Simple Terms

    A Visit to the Dentist

    A Visit to the Dentist

    Medications that increase photosensitivity

    Medications that increase photosensitivity

    Ultraviolet Radiation & Protection

    Ultraviolet Radiation & Protection

    Helpful Tips for the XP Patient

    Helpful Tips for the XP Patient

    Limited UV Exposure & Vitamin D

    Limited UV Exposure & Vitamin D

    Archive
    • April 2015 (11) 11 posts
    • May 2014 (1) 1 post
    • June 2001 (1) 1 post
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    ADDRESS

    437 Snydertown Road

    Craryville, NY 12521, USA

     

    Telephone: (518) 929-2174

     

    Email: xps@xps.org

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    Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

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    © 2015 by Xeroderma Pigmentosum Society