April 8, 2015

 

Xeroderma pigmentosum presents many challenges for those who have the disease as well as those who care for them. There are a number of variations (i.e., complementation groups) of the disease itself, as well as a range of symptom manifestations among individuals with...

April 7, 2015

 

 

Intro:

 

Civilization here on earth took off around 6,000 years ago. Where? Not in the arctic circle! Indeed, human societies tended to locate in warm regions when they enjoyed year round sunlight. Living outdoors for the most part is what we were designed to do.

 

Livin...

April 2, 2015

 

Xeroderma Pigmentosum (XP) is a scary diagnosis. It is considered a "rare disease" because it affects so few people each year. This means that it doesn't get as much attention or funding as other diseases. It also means that there's not as much information availab...

Please reload

Featured Posts

Helpful Tips for the XP Patient

April 7, 2015

1/3
Please reload

Recent Posts

April 8, 2015

April 8, 2015

Please reload

Archive
Please reload

Search By Tags
Please reload

Follow Us

ADDRESS

437 Snydertown Road

Craryville, NY 12521, USA

 

Telephone: (518) 929-2174

 

Email: xps@xps.org

  • Facebook App Icon
  • YouTube Classic

Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

Subscribe for Updates

© 2015 by Xeroderma Pigmentosum Society