April 8, 2015

 

Skin Cancer

Skin cancer is the uncontrollable growth of abnormal cells in a layer of the skin. It attacks one out of every seven Americans each year, making it the most prevalent form of cancer. However, ninety percent of all skin cancers can be cured if detected and t...

April 2, 2015

 

Xeroderma Pigmentosum (XP) is a scary diagnosis. It is considered a "rare disease" because it affects so few people each year. This means that it doesn't get as much attention or funding as other diseases. It also means that there's not as much information availab...

June 2, 2001

Cancer Therapy Risk

 

In an e-mail message to members of the XP-Connection list, Dr. Busch warns of a risk of cancer therapy for persons with XP. XP patients are very sensitive to some cancer therapy drugs such as cisplatin, which damage DNA and are repaired with the sam...

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ADDRESS

437 Snydertown Road

Craryville, NY 12521, USA

 

Telephone: (518) 929-2174

 

Email: xps@xps.org

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Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

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© 2015 by Xeroderma Pigmentosum Society