April 8, 2015

 

Xeroderma pigmentosum presents many challenges for those who have the disease as well as those who care for them. There are a number of variations (i.e., complementation groups) of the disease itself, as well as a range of symptom manifestations among individuals with...

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ADDRESS

437 Snydertown Road

Craryville, NY 12521, USA

 

Telephone: (518) 929-2174

 

Email: xps@xps.org

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Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

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© 2015 by Xeroderma Pigmentosum Society