April 7, 2015

While total avoidance of ultraviolet light sources is the most important practice for the XP patient, the following tips gathered from XP families will help in other areas of day-to-day living. Please feel free to send us more so we will share them. As always, please c...

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Helpful Tips for the XP Patient

April 7, 2015

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ADDRESS

437 Snydertown Road

Craryville, NY 12521, USA

 

Telephone: (518) 929-2174

 

Email: xps@xps.org

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Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

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© 2015 by Xeroderma Pigmentosum Society