April 8, 2015


Skin Cancer

Skin cancer is the uncontrollable growth of abnormal cells in a layer of the skin. It attacks one out of every seven Americans each year, making it the most prevalent form of cancer. However, ninety percent of all skin cancers can be cured if detected and t...

April 8, 2015

It was June of 1997 when we first met Bob Mumford. Mr. Mumford works for Hamilton Standard, the company that produces the space suits for NASA.


We came to meet Mr. Mumford because his wife read an article in the Ladies Home Journal about XP and she suggested that he mi...


Vitamin D is a fat-soluble vitamin that is naturally present in very few foods, added to others, and available as a dietary supplement. It is also produced endogenously when ultraviolet rays from sunlight strike the skin and trigger Vitamin D synthesis. Vit...

April 8, 2015



Should you or your child take beta carotene? If so, how much? Are there side effects? What are the potential benefits? If you or a member or your family has XP or a related disorder, these are questions worth considering.


Systemic Photoprotection

It's common knowledge...

Xeroderma pigmentosum (XP) and Trichothiodystrophy (TTD) are called DNA repair disorders. This means that your body has trouble fixing damaged DNA. In XP the damage is caused by UV light. There are a number of other DNA repair disorders. Cockayne syndrome is one. 


April 8, 2015


The phone rings, and the receptionist tell us Katie is on her way. Right away the staff goes into the routine of closing blinds, hanging sheets over some windows and doorways, and turning off lights. Katie arrives all wrapped up, wearing a full face visor, and is brou...


WEST LAFAYETTE, Ind. – Applying a sunscreen may help protect against the sun's burning rays, but if you're taking a medication, you may need to take additional precautions, says a Purdue University pharmacy expert.


Related Articles

  • UV index
  • Sunscreen
  • Sunburn
  • X-ray
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April 8, 2015


Xeroderma pigmentosum presents many challenges for those who have the disease as well as those who care for them. There are a number of variations (i.e., complementation groups) of the disease itself, as well as a range of symptom manifestations among individuals with...

April 7, 2015

While total avoidance of ultraviolet light sources is the most important practice for the XP patient, the following tips gathered from XP families will help in other areas of day-to-day living. Please feel free to send us more so we will share them. As always, please c...

April 7, 2015





Civilization here on earth took off around 6,000 years ago. Where? Not in the arctic circle! Indeed, human societies tended to locate in warm regions when they enjoyed year round sunlight. Living outdoors for the most part is what we were designed to do.



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Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

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