May 1, 2014

 

Symptoms

 

Wide range of symptoms:

 

Blistering or freckling after minimum sun exposure

 

Premature aging of skin, lips, eyes, mouth and tongue; with significant increased incidence of cancer in these same areas

 

Blindness resulting from eye lesions or su...

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ADDRESS

437 Snydertown Road

Craryville, NY 12521, USA

 

Telephone: (518) 929-2174

 

Email: xps@xps.org

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Getting a rare disease diagnosis is terrifying for patients and their parents. You are not alone. We are here to support you and help you find the light in the darkness. The XP Society is a unique to the world program for children and families who can never be in daylight. We help provide the XP family support, information and the informative foundation on which to build a healthy and happy quality of life.

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© 2015 by Xeroderma Pigmentosum Society